Significado e repercussões da síndrome congênita do ZIKA VÍRUS sobre as práticas de cuidados maternos em saúde no sertão da Paraíba

Abstract

Introduction: The outbreak of Zika Virus infection and the births of children with ZIKV Congenital Syndrome associated with microcephaly have unleashed a number of challenges to be faced by health services and families. In the family context, the changes that have occurred since the arrival of a child in need of special care, the perceptions and meanings built on the Syndrome and its repercussion on the practices of child care are still unknown. Objective: To analyze the significance and repercussions of the ZIKV Congenital Syndrome on health care practices for mothers of children affected by Syndrome in the context of the ZIKV epidemic in the interior of the state of Paraíba. Method: This is a qualitative study, in the period October 2017 to February 2018, eight mothers of children diagnosed with ZIKV congenital syndrome with an association with microcephaly confirmed in the context of the ZIKV epidemic were interviewed. diagnosis confirmed. For the delimitation of the number of participants, the saturation of the data was used as criterion. The semi-structured interview was used as data collection, in which they were analyzed through the systematization of the Bardin Content Analysis, in which three categories were identified regarding the relation of the mother to the diagnosis, to the treatment and to herself. Results: The diagnosis of congenital ZIKV syndrome occurred both during the gestational period and after the birth of the child, generating in the mothers feelings of anguish and fear, and in some mothers rejection to the child, developing feelings of insecurity and fear for not knowing exactly the and the repercussions on their lives and the life of the baby. The maternal meanings about the diagnosis of microcephaly reflected in the dedication of their lives to the children, in which mothers, most of the time, abandoned their professional and social lives according to their children, presenting low self-esteem. As for the care received by the child in the health care services, the mothers present perceptions about the lack of preparation of the professionals about the Syndrome, the long distance that they cover for the children to have access to the treatment, besides the perception of differentiation in the consultations performed by the Health professionals. Final Considerations: Mothers who participated in the research presented a high overload on child care, as well as an extremely low economic level, interfering with the quality of care provided to children and the lack of a network of public health care and psychosocial support intended mothers to face the adversities that the syndrome proposes.